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Maybe I shouldn't worry so much.

One of my worries is how the surgeries and hospital stays are going to affect Sammy emotionally. Even though he shows little memory of it all, I've feared him remembering on some level and having nightmares about the experiences.

Today, he woke up from a short nap in hysterics. Now, he rarely cries, and here he was, sobbing for mama. I mean, wouldn't let go of me, screaming, "I want my mommy!" I was certain this was it - I didn't want to bring up the words hospital or doctor - I didn't want to put them in his head if they weren't there, but on some level, I was sure that's what was going on.

We got in the car to pick up our CSA share and he was still freaking out. I drove with one arm reaching back, and he held on to my finger with everything he had.

"Sammy?" I tried again. "Why are you sad? Why are you crying?"
I braced myself for the answer. Through sobs, I finally got a reply: "Because the park has too many kids in it and I can't play!"

I wanted to cry at the sheer simplicity and innocence of it, at the fact that it wasn't this huge lingering monster of his heart surgeries, but something truly traumatic to a 2 year old's psyche: dreams about not being able to go down the slide because there are too many kids playing in his way.


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Comments (4)

that's so sad and sweet and happy at all once.

sammy, i hope the park is never ever too full for you! :)

Have you asked him what he remembers?

I asked Olivia and she said it was terrible when they wouldn't give her juice. That was her memory. LOL

Hugs - it's more traumatic for us than them when they're this young. :)

This is absolutely one of my fears, and reading his thoughts about why he was sad brought tears to my eyes. I constantly worry about how the hospital and doctor appointments and tests and blood work affect my kid, but honestly, I think that because he has had all this stuff a part of his life for as long as he can remember (and even long before then), it just part of who he is and he doesn't know anything different. Sort of like being a vegetarian... he doesn't know about meat, so he doesn't know what he's missing out on.. Not quite the same, but all this trauma is just part of who they are, so it's their normal, even though as parents we know there is nothing normal about this journey.

You gotta teach all those other kids to take turns at the slide Sammy! :)

 

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I'm a mama! SleepydoodleLittle Samson Daniel was born on February 24th, 2006. Sammy was born with a congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). He underwent his first open heart surgery at 4 days old and his second at 5 months old. He will need another surgery when he's between 2 and 3 years old. His mama and daddy, however, think he's absolutely perfect. You can read all about his birth here, or all about him on his site, baby samson.

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