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Done with day 1

Pre-cath fun done! There was the expected amount of hysterics (Sammy's and mine), but he really was such a brave little man. We were sent first for x-rays, then blood work, then an EKG and an exam. He even did well while we talked over what to expect tomorrow with the Fellow, learning to blow bubbles and playing with his Blues Clues toys.

Playing Connect 4 with dadaWe were done by 11, which was nice. We had lunch, Sammy got his fill of Disney TV in the cafeteria (what hotel doesn't have Disney and then charges $10 for a 24-minute On-Demand episode of Mickey Mouse Clubhouse?!?!?) and has been napping since 1:30.

We report back tomorrow morning at 7am for his cath. They expect it to take 1-3 hours. Jay and I will be able to be with him until he's sedated and ready to go, and then we will be there when he's waking. Since we're first case, there's a better chance we could go home tomorrow, but I'm not getting my hopes up. It all depends on whether or not they'll need to do work while they're in there.

And thanks, Shannon, for commenting with all sorts of explanatory information. Here's her comment:

For those who might want to know more, I did some digging on Wikipedia in the course of blogging my "Send good thoughts" blog entry, and have provided a bunch o' links to things like the Fontan procedure, HLHS, etc: http://geekhabitat.com/1208/send-hugs-positive-energy-prayers/

The short answer is the heart cath is being done to determine if Sammy will be a good candidate for the third of the three staged surgeries used to treat (not cure) HLHS. The first ("Norwood") is done shortly after birth and is mandatory; the Glenn (aka bi-directional Glenn, or Hemi-Fontan) is the next phase , and Sammy's had that already as well. The Fontan is the completion phase of the Glenn. If you're short on time, just read http://en.wikipedia.org/wiki/Fontan_procedure, specifically the "Indications" section. It explains why a cath is done prior to it, as well as why the procedure's used at all.

Your thoughts and prayers and positive energy really do carry us through. Thanks so much!


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Comments (8)

Glad today went smooth, here is to tomorrow being the same! HUGS!!!!

Lots of good vibes (and prayers) going out your way tomorrow. I've got my mommy board in on it, so the word is out...
Update when you can!
Lots of hugs to you, girl.

Awww, thanks for the shout out. I'm just glad I could use my geek powers for good instead of evil. ;)

Keep those Sammy pics coming... how does he manage to look so grown up and cute all at the same time?

Hugs and positive energy to the virtual 'fam.

Thinking lots of good things for easy procedures and peace of mind! I asked Zach to think good thoughts for Sammy's heart tonight while he sleeps, and he promised he would :)

(me too, of course!) love you!

Posted by Aunty Max | February 6, 2008 10:18 PM

E..
I am happy to hear that today went well, and that you are first tomorrow.
Here is hoping that you are home tomorrow, and can pu this behind you and get ready for the little mans BD..
D

Posted by Drea | February 6, 2008 11:09 PM

Been thinking of you and Sammy and following your updates on Flickr. Hoping everything goes smoothly today!

Keeping the positive thoughts flowing your way!

Posted by Heather | February 7, 2008 9:17 AM

i'm so glad all went well on day one! sending you positive thoughts for today.

you are so very strong!

 

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