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Pre-Fontan cath

We'll be headed into Boston shortly for Sammy's heart cath. Plan looks like this:

Hotel tonight, pre-cath workup (xray, bloodwork, EKG, who knows what else) tomorrow at 8:30am.
Hopefully done with that in 4-5 hours. If Sammy's up to it (and we are too), we might make a trip to the Aquarium. My folks will make it into town around dinnertime.
Thursday - cath day. We don't know a time yet. Apparently they will tell us that tomorrow. Cath, I believe, should take 3-5 hours.
Thursday afternoon/evening will look one of two ways: if the cath was simply exploratory and they didn't have to do any work AND it was early enough that they can observe him for a few hours after he wakes up and everything's fine, they'll send us home. If the cath was later in the day, they had to do work, or they want to observe him longer, they'll keep us overnight.
Either way, we should be back home Friday afternoon, universe willing.

I'm a wreck. Jay stayed home today to help get ready because I'm just so overwhelmed, I don't know where to begin.

I imagine I'll become extra good friends with Ativan over the next few days. Please keep Sammy (and us) in your thoughts - we could use the positive energy. Thanks.

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Comments (43)

Our thoughts and prayers are with you guys!!

Posted by Darren | February 5, 2008 12:33 PM

GOOD LUCK!!!!!!!

Posted by Shana | February 5, 2008 12:55 PM

Good luck. I hope that it's as stress-free, smooth and uncomplicated as it can be. Do you explain anywhere what the purpose of a cath is or can you point me in the right direction? Again, you are in my thoughts and prayers. Enjoy the aquarium. We were there 1 year ago and the kids loved it.

Posted by divrchk | February 5, 2008 1:21 PM

Definately be thinking of you guys! Hugs to you all.

Posted by Sarah | February 5, 2008 1:22 PM

Oh you brave people and your amazing little guy ... I'll be thinking of you often... all good energy. Hang in there!!

Posted by jesser | February 5, 2008 1:24 PM

you are always in my thoughts. he will make it through!

Posted by jeorg | February 5, 2008 1:27 PM

Lots and lots of love my dear.

Posted by Em | February 5, 2008 2:07 PM

You will all be in my thoughts until we see the next "we're home!" post. Sending positive thoughts and energy to Boston.

Posted by mrsgryphon | February 5, 2008 2:20 PM

Wow! That's a pretty huge pre-op list. Hope it doesn't take as long as you think.

I'll be praying for you guys. The little guy is going to be alright. I bet he will be a good candidate for the Fontan.

Loev you lots!!
Shari

Posted by Shari | February 5, 2008 2:31 PM

Sending tons of positive thougths your way!

Posted by Heather | February 5, 2008 2:42 PM

I have been checking back to your blog the past week to see how you guys were doing. Hang in there!! All positive thoughts going your way this week.

Posted by LC | February 5, 2008 2:51 PM

I will be thinking of you guys, and sending Sammy my prayers!!! ((((hugs))))

Posted by Cindy | February 5, 2008 3:08 PM

You're all in my prayers.

Posted by Suz | February 5, 2008 3:31 PM

you are certainly in my thoughts and prayers!! All three of you!

Posted by Caroline | February 5, 2008 3:33 PM

Thinking about you guys! Sending positive thoughts.

Posted by Amy | February 5, 2008 3:42 PM

Thinking of you.
~~~~GOOD VIBES~~~~~~

Drea & Hunter

Posted by drea | February 5, 2008 3:44 PM

You're in my thoughts. I can't even begin to imagine how hard this must be.

xoxoxoxoxo

Posted by E | February 5, 2008 4:25 PM

Sending lots and lots of positive energy
your way.

Posted by michelle | February 5, 2008 4:30 PM

I have been where you almost one year ago. It is stressful but you will get through it. And Sammy will do just fine. Sending good thoughts your way.
Ativan huh? It was xanax for me:)

Dina

Posted by Dina | February 5, 2008 4:57 PM

We'll be sending lots of positive thoughts from Michigan! (We usually send you our weather, so hopefully this will be better!)

Posted by Splolly | February 5, 2008 5:01 PM

Thinking of you, and sending all positive energy.

Posted by Susan | February 5, 2008 5:15 PM

We will be thinking of all of you. I hope the cath goes well and you get good news.
Best wishes.

Posted by Michael, Patty and Sophia | February 5, 2008 6:45 PM

HUGS & lots of positive energy headed your way!!

Posted by Jennifer | February 5, 2008 7:20 PM

sending you all the love and goodness we have.

Posted by sara nora & jason | February 5, 2008 7:23 PM

Definitely got you covered in the prayer department. Take deep breaths and repeat "This will all be behind us on Friday." I'll be checking back for updates often.

Posted by Andrea | February 5, 2008 8:20 PM

Good thoughts are headed your way!

Posted by Courtney | February 5, 2008 8:43 PM

Good thoughts are headed your way!

Posted by Courtney | February 5, 2008 8:44 PM

You have all the love and positive thoughts we can muster up here.

Posted by Allie | February 5, 2008 8:49 PM

Thinking of you, Sammy and Jay.

Posted by Brandy | February 5, 2008 8:49 PM

Big hugs to you. I'll be thinking of you guys.

Posted by Natalie | February 6, 2008 12:06 AM

thinking of all of you and sending lots of happy dragonfly thoughts to you!!! we just went to the aquarium sat. and "we found nemo, and jellyfish, and turtles and sharks with big teeth"

Posted by jess bess | February 6, 2008 12:57 AM

Thinking of you and yours.

Posted by CapableGirl | February 6, 2008 1:56 AM

Keeping all of you in our thoughts and prayers.

Posted by Stacy | February 6, 2008 6:59 AM

Lots of virtual hugs, positive thoughts, prayers and well wishes streaming in to Sammy, you and Jay from here in South Texas. (If you need nice weather, we have that too.)

For those who might want to know more, I did some digging on Wikipedia in the course of blogging my "Send good thoughts" blog entry, and have provided a bunch o' links to things like the Fontan procedure, HLHS, etc:
http://geekhabitat.com/1208/send-hugs-positive-energy-prayers/

The short answer is the heart cath is being done to determine if Sammy will be a good candidate for the third of the three staged surgeries used to treat (not cure) HLHS. The first ("Norwood") is done shortly after birth and is mandatory; the Glenn (aka bi-directional Glenn, or Hemi-Fontan) is the next phase , and Sammy's had that already as well. The Fontan is the completion phase of the Glenn. If you're short on time, just read http://en.wikipedia.org/wiki/Fontan_procedure, specifically the "Indications" section. It explains why a cath is done prior to it, as well as why the procedure's used at all.

Posted by Shannon | February 6, 2008 7:44 AM

Good vibes & good luck!

Posted by Leigh | February 6, 2008 9:02 AM

I've had all sorts of good thoughts going your way right along but especially this week. Wish I had magic to help you through but what can I say - your his Mama and you do what Mamas do!

Posted by Fran | February 6, 2008 9:16 AM

I've had all sorts of good thoughts going your way right along but especially this week. Wish I had magic to help you through but what can I say - you're his Mama and you do what Mamas do!

Posted by Fran | February 6, 2008 9:16 AM

Sending lots of positive energy and love.

Posted by Emily | February 6, 2008 9:17 AM

You three are in my thoughts - XOXOXO

Posted by Donna | February 6, 2008 9:23 AM

Positive thoughts and energy coming your way!
Peace,
kath

Posted by kath | February 6, 2008 10:09 AM

We love you all, Erika! Sammy is going to kick some pre-testing and cath ass!! xoxox

Alicen, Chris, and Ellie

Posted by Alicen | February 6, 2008 11:47 AM

My thoughts and healthy wishes are with Sammy and the 2 of you. Many positive thoughts have been streaming your way for days and now I will up the intensity!

Posted by Kelli | February 6, 2008 2:17 PM

Always in our prayers!!! May you have peace and strength during this time! Lots of hugs! Faith, Adam and Gavin

Posted by faith kuykendall | February 6, 2008 2:37 PM

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